On Wednesday we had to take Micah to the neurologist for a follow up. Micah did very well in the car as long as the Bipap was on. It is very hard for him to remain sitting for a long time if he doesn't have the help of the Bipap. I have to sit in the back seat with him because his head flops around too much to sit without help holding in place! Anyways the Dr.'s appointment was a complete joke, our doctor told us that a diagnosis wasn't important and a bunch of other nonsense. Needless to say we won't be seeing him again. Instead we have an appointment to see the neurologist we saw in the hospital. He really was great.
1 comments:
I'm so, so sorry you guys had this experience. The lack of SMA awareness within the medical community never ceases to amaze me...especially when they are unwilling to listen and learn. Who do you see in the hospital?
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