Thursday, December 24, 2009

Remembering Last year

Last year we were in the fight of Micah's life. These picts are a few from the hospital last year.

This picture is the first day home from the hospital 2 day before Christmas.

A my precious boys on Christmas day!

Thursday, December 10, 2009

Thankful for the last year

I remember when i was a kid and it took forever for one year to pass, now it flies by faster than i can believe. One year ago we were in the PICU at Cottage hospital on about day 18, we received the worst news a parent can get, Micah was 6 months old. Our son had a TERMINAL illness with NO CURE! Since then we have had 2 shorter hospital stays and lots of worrying but getting more comfortable trusting my instincts as a mom rather than the machine's numbers. Micah has lost his beautiful smile and i think that is one thing that just kills me. sometimes i think i see him smirk though. His eyes still smile and he laughs all the time. Micah is good at making me laugh and that just warms my heart. Joseph went from being afraid of all the change and equipment to helping and playing with Micah. Joseph is very protective of his little brother. Micah is learning how to get our attention and try to tell us what he wants with noises and his eyes. It is amazing to me also that we were told one year ago that our son would probably live between 9 and 18 months and here we are at 18 months and he is still strong and happy and fairly healthy for a kid with a terminal illness. Micah has brought so much meaning to our lives and totally rearranged our priorities and i am so grateful for that. One year is not very long but every day is precious to us. I am so grateful for all the people we have met along this road, for the love and support and the strength I have found within myself. Most of all I am thankful for the last year with my son and every day we get to continue to care for him and love him.
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