So today we had a pretty good day. Micah spent a good amount of time upright sitting and horsing around with me, Joseph and Granna. I was so proud, I took him to the bank with me tonight and I didn't even take his Bipap or his pulse-ox just his suction and he did great! All the girls at the bank were loving seeing him again and he was loving the attention. Thank you God for such a good day.
Our prayers go out to Beau's family in Australia. Beau was 10 months old and earned his wings yesterday. His battle with SMA is over but never forgotten. Please pray for this family.
Our prayers go out to Beau's family in Australia. Beau was 10 months old and earned his wings yesterday. His battle with SMA is over but never forgotten. Please pray for this family.
1 comments:
My name is MJ Purk. My real name is Margaret. I am 21 years old and am a junior in college. I have SMA type 1+, meaning I don't fit in any category. I'm sorry to hear about Michah being diagnosed with SMA. I have an organization that sends blankets to kids with SMA and would love to send one to Micah. My organization is called B4SMA. My caregiver and several others make the blankets. If you would like more information, check out http://www.our-sma-angels.com/b4sma/
Should you decide that you would like to receive a blanket, please e-mail me with your post address. All we ask in return is a picture of Micah with his blanket covering him. Also, if I can help answer any questions you may have regarding SMA, please don't hesitate to email me at any time. I am not afraid to answer any questions you might have. Big hugs to you and your family.
MJ
www.caringbridge.org/visit/mjpurk
www.our-sma-angels.com/b4sma
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